travolta
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Post by travolta on Aug 5, 2023 8:40:19 GMT
If we need the total care that is beyond our children to cope then we have obviously lived too long.
Don't fool yourselves and have some self respect.
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Post by moonraker on Aug 5, 2023 9:37:04 GMT
If we need the total care that is beyond our children to cope then we have obviously lived too long. Don't fool yourselves and have some self respect. Which requires a lot of amplification. Do you mean that we should then go to Dignitas in Switzerland? Or do away with ourselves through DIY? Or expect/hope that close relatives will send us on our way (and there are sad stories about the legal consequences).
Your theme is one that has occupied me recently as I awaited surgery that could have gone wrong. Luckily it didn't, though now I wonder which particular old-age infirmity will precede my demise.
I've made it clear to my GP and to the surgeon that I did not wish to be resuscitated, but when I was discharged from hospital my notes had "Resuscitation? Yes" on them. A cousin suggested to me that even with a "DNR" request medics would feel obliged to do all they could to keep me alive because of their own beliefs and the possibility of litigation.
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keitha
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Post by keitha on Aug 5, 2023 10:01:32 GMT
I signed a DNR "disclaimer" for mum, was one of the hardest things I've ever done, but I knew that it was her wish to go, She had over 3 years after a stroke unable to speak properly, stand, sit up without straps to hold her upright, feed or toilet herself.
looking back and being honest if i kept an animal alive like that i'd be prosecuted for cruelty.
Why the DNR in mums case she was refusing to eat or drink, the nursing home knew is she lapsed into unconsciousness, they would have to dial 999 and the hospital would tube feed her and put her on a drip until she was fit to go back to the nursing home and the cycle would repeat.
Sorry if this is a bit disjointed, even now 13 years on there are tears running down my face as i type this.
part of the reason it is was so hard is that when the Nursing staff spoke to me about it I needed to make the decision quickly. and I tried to speak to my siblings and neither answered the phone for over an hour.
Eventually I made the decision with some input from Dad, and my wife. when I had signed the forms I went back and told her I'd done it. She, as best she could hugged me, told me she loved me and gave me a kiss.
Later that night after I got home we had a call from the nursing home that if we wanted to see her we should go then.
I told my wife we got changed and were just going out of the door when the phone rang again, she had died in the 5 minutes. Given we were well over an hours drive away we couldn't have made it.
it's so sad that she died alone, dad had only gone home an hour earlier. and he wouldn't have left her had he known or anticipated it.
Dad passed about 6 months later, I don't care what was on his death certificate, I know he died of a broken heart.
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Aug 5, 2023 10:34:44 GMT
Post by bernythedolt on Aug 5, 2023 10:34:44 GMT
Wow, that was a tough read, Keith. It sounds like your mum had said her goodbyes and decided it was time. Much sympathy.
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keitha
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Aug 5, 2023 14:42:18 GMT
Post by keitha on Aug 5, 2023 14:42:18 GMT
Honestly I feel that she had reached the end of her tether.
She was very independent and had struggled for 2 years to recover from the stroke. Part of the physical issue was the stroke damaged the right side of the body. a couple of years before she'd had an accident and broke her left hip and despite a hip replacement it never healed properly due the her osteoporosis and she had been mostly weight bearing on the right side. after she got home from the hip replacement she slipped and broke her left arm and to the day she died it never healed properly, the stroke completely took what remained of her mobility. I think she decided enough was enough.
strangely in a way it did some good as it caused a lot of family discussions about what people wanted in the same or similar position. My Kids know what I want, and I and their partners know what they want.
gawd this has got me thinking :-
Some years before one of my uncles was dying of cancer, one day whilst we were visiting he pulled some bottles from under the pillow, and asked my mum directly which ones would help him end his life when it got too much and which wouldn't. Mum asked the rest of us to leave the room and about 5 minutes later asked us back in, I never knew and never asked if she had done what he asked or had refused.
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Aug 5, 2023 20:15:27 GMT
Post by bracknellboy on Aug 5, 2023 20:15:27 GMT
.. Why the DNR in mums case she was refusing to eat or drink, the nursing home knew is she lapsed into unconsciousness, they would have to dial 999 and the hospital would tube feed her and put her on a drip until she was fit to go back to the nursing home and the cycle would repeat. Sorry if this is a bit disjointed, even now 13 years on there are tears running down my face as i type this. part of the reason it is was so hard is that when the Nursing staff spoke to me about it I needed to make the decision quickly. and I tried to speak to my siblings and neither answered the phone for over an hour. ... unfortunately DNR orders are quite specific: i.e. do not resuscitate. They are are not general 'do not treat'. A "living will" however might help in this situation as its an advanced decision about medical treatment which can be more general than a simple DNR. however I would hope that with POA for health in place, in the situation you describe the health system would look to discuss not just 'treat'. In the last 12 months I have signed a DNR (with my sibling) for my father. We had discussions with him beforehand, but given that he has a level of dementia there are lots of thoughts and emotions going on. I am comfortable it represents what he actually wants: and its important to always keep in mind it needs to represent what the person he wants now, in his current position, not what he might have thought several years ago about being in that state. This stuff is difficult. I'm glad that we worked to get it in place ahead of need.
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michaelc
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Aug 5, 2023 23:01:46 GMT
Post by michaelc on Aug 5, 2023 23:01:46 GMT
Just wanted to add to the mix what about children who were born in a similarly incontinent state? i.e. no toileting, no speech, no understanding, no walking etc. Shouldn't Dignitas, DNR orders etc apply to them also? If not why not ?
And a related matter, are all lives equal? I always used to think so but have been quite surprised at the number of people I encounter who consider children as being more important - at least within the family.
Edit: I missed in the 1st paragraph that despite all that they might be blissfully unaware - i.e. happy.
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Post by bracknellboy on Aug 6, 2023 6:10:28 GMT
Just wanted to add to the mix what about children who were born in a similarly incontinent state? i.e. no toileting, no speech, no understanding, no walking etc. Shouldn't Dignitas, DNR orders etc apply to them also? If not why not ? And a related matter, are all lives equal? I always used to think so but have been quite surprised at the number of people I encounter who consider children as being more important - at least within the family. Edit: I missed in the 1st paragraph that despite all that they might be blissfully unaware - i.e. happy. well unfortunately of course Dignitas doesn't apply to adults in the UK (not under UK law anyway), more is the pity. The moral problem for the scenario you have painted: ...no speech, no understanding... means they are not able to and have never been able to have their own view on the matter, nor express it. And hence they have never been able to give advance (or any) consent to a DNR, nor to euthanasia. if you do an advance DNR under POA because the adult patient has lost mental capacity to do so, hopefully as the attorney you are taking into account what you genuinely believe would have been their wish under the circumstances. DNRs by the way do not require patient nor even next of kin consent: they can be put in place by the health giving agency. So yes they absolutely can apply. In the situation you describe, I'm not sure what the parent/guardian's position with is in regard to authorising DNRs or Living Wills. If they are a child, I would have thought you have the right to put at least the former in place, and the right to refuse treatment on their behalf, but subject ultimately to the courts acting as an arbiter as to whether it is reasonable [for example, there is precedent for the courts overruling parents who want to refuse blood transfusions on behalf of their children due to religious beliefs. At least that is my recollection].
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Aug 6, 2023 6:20:38 GMT
Post by bracknellboy on Aug 6, 2023 6:20:38 GMT
If we need the total care that is beyond our children to cope then we have obviously lived too long. Don't fool yourselves and have some self respect. while I get the sentiment, personally I think that is too simplistic. What about those without children ? What about those with children but those children had themselves to always be cared for by the parent or others ? What about those with children but who no longer have a relationship with them ? Or who are unable to provide care for other perfectly acceptable reasons - geography, job for example. And turning it around, many would not want to put that burden on their children. People can need care, not be able to get it from family, but still be able to have a quality of life they are happy with. If we extrapolate your premise, then any person who needs more care than can be practically given by family have also outlived their lives: however long or short. Children who are born unable to ever look after themselves; adults that suffer disease or injury that renders them unable to look after themselves. While to euthanise because those that are incapable of fully looking after themselves (too frail to have a bath on their own but otherwise fully 'with it'?; the child with sufficient problems they will never be able to function independently) is a valid argument, I doubt too many would end up agreeing with its logical conclusions.
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Post by bracknellboy on Aug 6, 2023 6:27:05 GMT
For those who believe the criminalisation of assisted suicide / euthanasia is fundamentally wrong, if you are not aware of them then this org. Dignity in Dying could be of interest to you (to sign up to, to contribute, to assist with campaigning). My brother had a friend in the NL who was diagnosed with aggressive terminal cancer. They have recently been to her funeral after she chose euthanasia as it progressed, in discussion with her wife. The fact that it is so normalised over there is almost shocking - good shocking - to our ears.
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travolta
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Aug 6, 2023 11:48:43 GMT
Post by travolta on Aug 6, 2023 11:48:43 GMT
Awful isn't it? (I'm mean in the way of 'shock and 'awe'). How do you manage it wisely?
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ozboy
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Aug 6, 2023 13:55:34 GMT
Post by ozboy on Aug 6, 2023 13:55:34 GMT
For those who believe the criminalisation of assisted suicide / euthanasia is fundamentally wrong, if you are not aware of them then this org. Dignity in Dying could be of interest to you (to sign up to, to contribute, to assist with campaigning). My brother had a friend in the NL who was diagnosed with aggressive terminal cancer. They have recently been to her funeral after she chose euthanasia as it progressed, in discussion with her wife. The fact that it is so normalised over there is almost shocking - good shocking - to our ears. For those of reasonably advanced years, you will remember a very fortuitous scene in "Soylent Green".
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michaelc
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Aug 6, 2023 14:15:41 GMT
Post by michaelc on Aug 6, 2023 14:15:41 GMT
It really does seem to be that most people would rather something like the NL model described above - certainly a change required from our current set up.
So if it would be popular, why don't the politicians do something? I can only guess they really don't like going too far into issues which are fundamentally depressing. They want to keep a smile on their faces all the time....
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Aug 6, 2023 18:30:34 GMT
Post by bracknellboy on Aug 6, 2023 18:30:34 GMT
Awful isn't it? (I'm mean in the way of 'shock and 'awe'). How do you manage it wisely? I might make a response to this, but I'm genuinely not sure what it is you are saying/implying, or not 100% sure which post it's a response to.
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